Disability Benefits Help is an independent organization dedicated to helping people of all ages learn more about the Social Security disability application process, receive disability benefits, or stay on benefits after approval. Their staff can be reached at help@disability-benefits-help.org, or you could ask a question in their forum: http://www.disability-benefits-help.org/forum

 

 

WINTER 2016-2017

* Steven L. Margolies, M.D.
  Family Educational Conference
* HANY Scholarship Program
* Open Enrollment for 2017
  Health Insurance

FALL 2016

* Family Educational Conference
* HANY Scholarship Awarded
* LadyBugs Program
* 2016 Fall Farm Festival
* 2016-2017 Annual Appeal

SPRING 2016

* Scholarships Available
* Insurance Reminder
* HANY Family Retreat at
  Mohonk Mountain House
  November 11-13, 2016
* Nat'l Hemophilia Foundation
  Annual Meeting

WINTER 2015/2016

* HANY Scholarship Program
* New York State of Health
  Essentials Plan
* 2016 Raffles for Research
* Advocacy: Anti-Mandatory Mail
  Order Reform Legislation

FALL 2015

* The Feldenkrias Method
* HANY Scholarship Awarded
* Prepare Ahead For School
* Preparing for School Trips
  and Activities
* SAMPLE LETTER: After
  School Activity  and School
  Trips

SUMMER 2015

* Memorial, Honor & Tribute
  Contribution  
* Summer Reminder / Travel
  Reminder
* Mohonk Mountain House
  Men's Retreat
* SAT Prep Course

 

 

 

 

 

 

SPRING 2015

* Plans to Expand Insurance
   Coverage
* Health Insurance Portability
   and Accountability Act (HIPAA)        
   compliance

WINTER 2014/2015

* Updated Personal Health
   Insurance Toolkits Available  
* HANY Scholarship Program
* Child Health Plus (CHP) Bill
   Signed by the Governor 

FALL 2014

* Your donation helps the
   bleeding disorders community  
* HANY Scholarship Awarded
* Prepare Ahead For School
* Preparing for School Trips
   and Activities
* SAMPLE LETTER:
   Recommended  for After
   School Activity  and School
   Trips

SUMMER 2014

* HANY Scholarship
* Memorial, Honor & Tribute
   Contribution  
* Patient Services Inc.
   Programs Assistance for
   Bleeding Disorders  
* Travel Reminder
* Bleeding Disorders Premium
   Assistance Hemophilia & vWD

SPRING 2014

* Genotyping for Progress in     
   Hemophilia
* Plans to Expand Insurance
   Coverage
* Health Insurance Portability
   and Accountability Act (HIPAA)        
   compliance

WINTER 2013/2014

* The Official Health Plan
   Marketplace for the People
   of New York  
* Updated Personal Health
   Insurance Toolkits Available  
* HANY Scholarship Program
* Child Health Plus (CHP) Bill
   Signed by the Governor 

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SUMMER 2013

* The Feldenkrais Method
* What We’re Learning About
   Drug Company Payments to
   Doctors

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Study of 50 Years of Hemophilia Healthcare Outcomes Yields Surprises: Despite 50 years’ worth of advances in the area of comprehensive care for patients with bleeding disorders, males with hemophilia still grapple with significant health-related issues affecting their quality of life, says a new study.  To read the announcement click here.
 
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SIPPET Results Presented at ASH 2015
The results of the SIPPET (Survey of Inhibitors in Plasma-Products Exposed Toddlers) study were presented at a plenary session of the recent American Society of Hematology (ASH) conference. SIPPET was a randomized study which took place between January 2010 and December 2014 that collected data on 251 children under 6 years of age with severe hemophilia A from 14 countries in Africa, North and South America, Asia and Europe.  To read the article click here.
 
 
 
Stem Cells May Correct FVIII Deficiency in Hemophilia A
The clotting factor deficiency causing hemophilia A may be reversed using pluripotent stem cells (iPSCs), according to findings published in Cell Stem Cell.  
 
Researchers from the Institute for Basic Science and Yonsei University in Korea used mice models of hemophilia A in order to prove the viability of iPSCs as a cure for hemophilia A. For the first time ever, the investigators collected urinary cells from patients with the chromosomal inversions causing hemophilia to make the iPSCs. To read the announcement click here.
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